Double Locks Fun
A week ago today, James and I decided to cycle down to Double Locks for a drink. It was a lovely evening and we thought it would be enjoyable. The cycle there was fun and we picked a table out the front. After I went inside to get some drinks, Dave G and Dave B appeared on their bikes also. They were just locking their bikes up when it happened.
I had my first ‘public’ seizure. It was quite a serious one for me as well. I had passed out pretty quickly. James’s Blog gives an account of things here. It took a while for me to come round properly so that i wasn’t totally confused. I don’t remember much about the lady who helped us but i do remember feeling calm and not too worried because she was there talking to me. An ambulance lady was also very helpful and gave me oxygen which seemed to help me come back to reality quite quickly.
Many thanks must be extended to Dave G and Dave B. Dave G helped by looking after our bikes and Dave B was amazing by giving us a lift in his new car, back home.
As far as injury is concerned…all major injuries were prevented by wonderful people caring for me. I did however do my typical thing of gnashing either my tongue or lips. On this occasion my top teeth clamped down on my bottom lip. My bottom teeth slashed the inside of my bottom lip, now progressing into some lovely mouth ulcers and my top teeth made nice dents in the visible part of my bottom lip with the additional side effect of damaging the nerves. I haven’t really felt anything in my bottom lip since last Wednesday now but I’m hoping it will wear off and the nerves will repair themselves. I think it’s getting a little bit better. Not sure.
On Monday this week, coincidentally I had an MRI scan booked at the hospital in Plymouth. They called in the morning to say that they MRI scanner was broken and that an engineer was coming out to fix it. Thankfully we did eventually get my head scanned at 4:30pm (the original appointment was for 11:45am). I had a look at the scan on the screen and it looked to me as though the cavernoma was bigger than it used to be. It may have been my imagination or just the magnification or something. I don’t know but will no doubt hear from Mr Whitfield for an appointment relatively soon.
Then last night I had another quite major aura. It didn’t progress into a full seizure but probably would have done if James hadn’t have been with me. I could feel it starting up. Felt spaced out all of yesterday and don’t feel significantly better today. Also had a headache this morning. I feel like i need a holiday of some sort.

Hi Roz,
I have just been searching the web for information on cavernomas (of which I have 7, and had 1 removed in 2000) and came across your blog. You’re far more informed about them and the risks involved than I! For example, I didn’t know about the collection of iron from the bleeds causing more seizures. So it’s been really helpful to read your account of things.
I’m sorry to hear about your recent seizure, and I hope you’re feeling better now :-) It must be a scary experience to have to go through.
Other than mild temporal lobe seizures, I haven’t had any such problems (touch wood!) so consider myself very lucky.
Take care,
Lucy
Blimey! 7 cavernomas! I have just the one. Check out the scans of my cavernoma at http://gallery.jamesoff.net/v/Rozs-Brain/
Thank you for reading my site and i am glad to hear that you have had one of your cavernomas removed successfully.
Roz