MRI Results

On Wednesday I went to Plymouth with James to meet Mr Whitfield regarding the MRI scan I had 3 weeks ago. I decided to take the whole day off work because it’s almost 1 hour each way and the whole thing was relatively worrying.

Mr Whitfield was very nice as ever and said that he didn’t think there was any real change in the way the cavernoma was looking - good news! He said that it didn’t necessarily mean it would be always ok and that we should do repeat scans regularly. He has proposed we do a scan every couple of years which sounds sensible. He stressed again that he wouldn’t like to perform surgery on my cavernoma because it’s just too risky due to position and size and my relative quality of life means it’s not worth it. His major concern however was that my seizures and auras have been making a return and so he is going to write to Dr Honan to suggest we bring forward my appointment due in November so that we can review medication dosage/variety. I will have to include my GP in this as she’s very concerned at all times about how medications will affect potential babies!

Anyway all in all, no real change which is the best news i could have hoped for, aside from maybe the cavernoma having disappeared although i’d suspect they’d mixed my scan up with someone else’s if that had happened! haha.